Hi Everyone,
I am Kate and I am one of the owners of Children’s Therapy Connections and I am also the Mom of a three year old boy with Autism. This will be a blog where parents or friends of children with special needs can come to share our journey. Getting a diagnosis that your child has special needs is extremely difficult, together we can help each other through the ups and down’s of life with a special needs child. My first child was born three years ago and I remember when he was a newborn thinking that something was wrong. He had a difficult time nursing and within the first two months we had switched formulas 5 times. My guy had a hard time being cradled and did not like his head down (can anyone say sensory). I just kept trucking along thinking I was just being a nervous first time Mom and thought I was looking for problems. I noticed at around 4 months old that he had a hard time being in other people’s homes and actually made a joke that he has Aspergers (Ha, Ha right). During this time from 4 months to 6 months I began to notice that he never smiled and did not make any sounds, no need to worry because boys are naturally slow (right?). My son also started to get nose bleeds and I was told by the doctor not to worry because my son was probably picking his nose and causing himself to bleed (note: my son could barely stick his thumb in his mouth and hated anyone touching his face). Over and over I called the doctor and complained that the nose bleed’s were continuing, I was now told this was probably viral (don’t you just love how doctors always say virus when they have no clue). Around 9 months old I was starting to get really mad, I had zero speech or sounds and he was not crawling. Once again I went back to the doctor and made them draw blood to look for a problem, the doctor came back into the room and looked sheepishly at me with the results. I wanted to hit him with my diaper bag when he told me that my son’s platelet count was 30,000 ( normal is 250,000 to 350,000). I was immediately recommended to a hematologist to rule out cancer. I was so scared that this little person who had stole my heart was dying, I prayed, cried and tried to muddle through. I was told by the hematologist that my son has thrombocytopenia (low platelet count, duh…). The doctor could not explain why or how this had happened so more tests were needed. While the testing was done my little 9 month old baby was not allowed to get or drink for over 6 hours. The nursing staff complemented me on how well behaved my kid was because he had not cried once during this time when he was not allowed to eat or drink ( I was so proud of my little tough guy, should have seen the signs but no). The nose bleeds ended up being from vaccinations and his low immune system. I was then told that he had some developmental delays and it was probably from having thrombocytopenia for so long, it would take over one year for his platelet count to come back up. During this time he started crawling and saying mama, baba and lots of grunting. The doctor made an appointment for Early Intervention to evaluate my son for speech delays. My baby had started spinning everything he could get his hands on and showing little interest in regular toys or play. I would call his name over and over but he seemed like he could not hear me. Early Intervention came to evaluate him just after his first birthday and said he qualified for speech therapy one a week and occupational therapy every two weeks for Sensory Processing Disorder. I was crushed by the news that my beautiful boy was having “problems” and I started to get educated really quick about his condition. I read every book and every article on the internet about Sensory Processing Disorder. I was becoming the crazy parent that spent all my free time researching sensory and what I could do to “fix” the problem. My family was starting to think I was getting a little to obsessed with his sensory issue and told me that he would just grow out of it. The therapy had started but after months I was getting nowhere, no more words and having a more difficult time getting my child to go out into the world. My little guy’s platelet count was getting better and was told that I should give him the MMR vaccine because God forbid I let him get mumps or rubella. Like the good parent I was I let them vaccinate him and guess what???? My baby lost all speech and started toe walking and falling a lot. I was starting to feel like a failure as a parent and felt I had no one who could understand my fears. I lost my occupational the